Monday, October 12, 2009

Pain, Pain, Go Away... That was fast...

Today was less than desirable, although it did have good moments. Brevin woke up in a good mood, wanting to watch TV, as he was staying home from school due to the flu. He had breakfast and took his medication- Prilosec,Iron and vitamin. After he ate, he watched Star Wars for about an hour. By the time lunch was ready, he was not hungry because his stomach hurt badly. He laid in bed for about two hours with a heating pad to comfort the pain he was experiencing. It was the most discomfort I have seen him have and the pain seemed to be excruciating. Things got better for him after his sister and I went outside and left him alone to rest. We finally called the doctor for ideas to control the pain. We're waiting for the call. After eating a late afternoon lunch, it seems that he has enough comfort to bother his sister and pick on her while she watches her movie. Perhaps that's a good sign. Now for the molar that is about to fall from his gumline- there is always something new!

Friday, October 9, 2009

H1N1- What next?

Wow it's amazing what can transpire in a week! Yesterday morning as Brevin was getting ready for school, I noticed a cough that had developed. Clearing his throat and sniffling- was this a side effect from the medicine? Did it weaken his immune system enough that he was susceptible to everything? The kid hardly ever gets sick- unless it's an ear infection so what is going on now? We already had an appointment scheduled for today to visit with his GI specialist about our options and the direction we were headed for treatment. At 7:15AM we headed to Omaha to make our appointment at Children's Hospital. The nurse took Brevin's temperature after check-in. I was alarmed when she said, "102.7." Brevin was supposed to have several tests today that would help determine what our long-term treatment plans would be. None of those would be done since he was running a fever and possibly dealing with the flu. After reviewing the film from the pill-cam and discussing the next steps in treatment, we ended the visit by terminating use of prednisone and ordering a test for influenza. How do they test for influenza? The patient lays down and the Drs pour liquid in the nostrils and then put long tubes in there to get it out. YUCK! THE RESULTS... + Type A. Whooo Pig Suey! Razorbacks!
So... we returned home and wiped EVERYTHING down with Lysol and continue to wash, wash wash! The good news, perhaps the stoppage of prednisone is a positive thing.

Wednesday, October 7, 2009

The second day of Prednisone...a success. Brevin was tired this morning, but nothing abnormal. It was more due to him not going to sleep on time- as he was "hyper" last night before bed. Football was tiring, but again, nothing different. Thank you, Lord, for another enjoyable day!

Crohn's-The Diagnosis

Since February of 2009, Brevin has struggled with stomach pain. The first xray showed that he was constipated. Miralax was supposed to take care of that. Then the pain continued- sometimes to the point that all he would do is sleep. He was hungry until food was placed in front of him and then the pains would become overwhelming. It seemed almost like a mental issue- was he talking himself out of eating? Our trip to the Mall of America in February was one we'll never forget. As we were trying to take in all of the shops, Brevin moved from bench to bench in the mall doubled over in pain. Phone calls to our local Dr. did nothing for us. Weight continued to drop from his once 110 lb. body while the Miralax kept everything moving throughout. Was this hormone induced? Was he just growing so much up that he stopped growing out? That didn't explain the pain- well severe constipation was the medical answer.

Summer came and went- swimming, baseball, tennis. Staying active was something that he managed to do. Perhaps that explained the weightloss. His appetite was greatly reduced, yet his physical activity continued. We visited our physician at Creighton Pediatrics in Omaha, NE. He referred us to a GI Specialist at Children's Hospital.

School began with everyone asking Brevin, "How did you lose all that weight?" Being called, "skinny" was not something he ever imagined, as last year it was the opposite. Tests, tests and more tests. Endoscopy, Colonoscopy and finally the pill cam. "Swallowing a camera??" I told all my friends, "Can you believe the technology?" The results are in... Crohn's Disease.

Yesterday was the first day of Prednisone, iron, Prilosec and vitamins. Aside from a little hyper activity before bed, Brevin's mood was great and acted as though things had never been better!